Now that chemo is over, i’m ready for this business to be done. I didn’t want to get too excited and celebrate last week during my last treatment, with all the hurdles left in store. I need to keep my head in the game, and not go getting excited about the finish line. But now that I’m a week out of chemo, and beginning to get my energy back, I am, as Grace likes to say, “all done”. I want surgery done yesterday, radiation over with, and reconstructive surgery on the calendar. I know I won’t feel like the experience is behind me until the reconstructive surgery is complete, and all i can think about is getting it scheduled. If it’s on the calendar, and I know when it is, I will have an end date to work towards. Somehow, this seems so important to my mental health right now.
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Are you aware?
I’m not sure if you were aware, but October was breast cancer awareness month, and I am so glad it’s over! Don’t get me wrong, I fully appreciate the effort, fundraising, and awareness for breast cancer, but it was sort of like being pregnant – all of a sudden everyone around you is pregnant or has a baby, and you can’t escape it.. It’s been a month of spotlight on an issue that I am still coming to grips with.
Turndown service at the hotel in Nantucket almost put me over the edge. Elissa is a true friend – after the first night of breast cancer pink ribbon chocolates on our pillows, she had a word with the front desk, asking them to skip the pink ribbon bit the following night. I love chocolate as much as the next girl, but the last thing I wanted on my girls’ weekend getaway was yet another cancer reminder. I imagined the housekeeper creeping into our cottage with her pink ribbon chocolates, taking special care to set them out, because don’t you know – the guest in this room has breast cancer.
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Good Sport
I’m sick of being sick. Let me clue you in on a little secret about chemotherapy… the novelty wears off after the first treatment. Looking back, I see myself as almost cocky, walking into the treatment room the first day, with hair still on my head. There was a certain excitement to a new experience.
I have 3 chemotherapy treatments left, and two weeks after the end of treatment, I will have a double mastectomy, having found out upon our return from Greece that I am positive for the BRCA 1 mutation. I’m terrified of the surgery, and am in a weird limbo of wanting chemo to end, but wanting it to go on forever to avoid the surgery. Perhaps surgery wouldn’t be so frightening if I was going to get reconstructive surgery at the same time, but because Radiation treatment can damage reconstructive surgery, I will get the best results by waiting six months after Radiation is complete. Herein lies the source of my biggest fear; I will come out of the double mastectomy boob-less. Remember when I said I knew there would be more milestones? I look back at my hair loss, and the trauma it caused, and I laugh… that was NOTHING compared to thinking about waking up without breasts, and a giant gash of a scar where they used to be. I will live without breasts until six months after radiation is complete, when I will be recovered enough from the first surgery and radiation to get reconstructive surgery. Reconstructive surgery will likely be the end of next summer, more than a year after I was diagnosed. Sometimes it feels like this year will never end.
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The joys of chemo
From my Facebook update yesterday at 2 pm.: First chemo done, woohoo!! Little dizzy, but some would say that’s me. We’ll see what the next few days bring.
Oh the optimism of the first five minutes after treatment. From there, I got progressively nauseous on the ride home; at which point we got a call from the Dr’s office. We’d forgotten to give a blood sample, but were told we could stop by my local Dr’s office, they would call it in and I could get my blood drawn there. By the time we got there I felt weak and flu-ish, and was very susceptible to smells. It’s amazing how you can be healthy, fit, and walk into a Dr’s office and they tell you that you are sick. Then there’s this medicine you take to help the sickness that hasn’t made you feel sick, go away. You start taking the medicine and presto, you feel sick in an hour. And that means you’re getting better. Weird.
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Not my grandmother’s breastcancer
Our trip to Greece now in question, it had become something more than just a fabulous vacation and a time to reconnect. We needed this trip… to be together, to recoup, to gather our strength as a family for what lay ahead. A week before we were scheduled to leave, we met with the Doctor at Boston IVF, who told us that if we were able to harvest any eggs, the procedure would have to be done during the coming week, and we would not be able to go to Greece. We were scheduled to return July 27th, with chemo scheduled to begin July 29th. Prolonging treatment any further was too great a risk.
The Doctor stressed to us that there were no guarantees that IVF would enable us to have another child. Before my diagnosis, my intent was to have another baby – I wanted it more than anything. I went home that night, awaiting test results from the clinic, feeling as though I had to make a choice between another child, and a trip my family so desperately needed. In my head, I knew that it wasn’t that simple, but my heart ached. I’ve often had people tell me how strong I’m being, or how well I’m doing, and I wonder “what else would I do? Curl up in a ball and cry?” I’d rather make the most of things and have a little fun. With a little humor, I do my best to avoid that moment when it all comes crashing in, when the enormity of the situation is too much to ignore, and you finally do curl up in a ball and cry. Standing in the driveway in front of the fertility clinic, I called my best friend and melted down, crying for all of the plans that cancer had forced me to rearrange, the awful situation I found myself in, and for myself. By the time I hung up the phone, I had cried myself out, and was determined to regain control of the situation in the best way I could. I decided to go to Greece.
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The unexpected
Life moved quickly and blissfully for four beautiful years, a span of time when I met and married my husband Lee, to buying a new house, having a career and busy travel schedule, to the birth of our daughter, Grace, in June 2010. It was the happiest time of my life.
I knew that my breasts would change after I finished breastfeeding Grace at 5 months, however I soon discovered some unwelcome changes including a hard, pebble-sized lump in my left breast just before Grace’s first birthday. It just didn’t feel right. I called my doctor’s office and made an appointment in two weeks time after I’d retued from a business trip in Miami. During that period, I spent so much time messing with the spot that I left a large green bruise the size of my thumb and I could no longer find the spot. When I got home, I cancelled my doctor’s appointment, thinking I was being paranoid, and promptly put the lump out of my head.
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